Tuesday 28th March 2023
Last week, the scope for a new revision of the British Society for Rheumatology’s systemic sclerosis (SSc) guideline was published in the ‘Rheumatology: Advances in Practice’ journal. SRUK are excited to be playing a role in this timely and relevant project. Read on to find out more about the BSR guideline and how it’s revision could benefit you!
Thursday 16th March 2023
SRUK says the government plans for energy bills offer "short-term respite" - with longer-term solutions still needed.
Friday 10th March 2023
Calcinosis is often a debilitating and painful symptom of systemic sclerosis. Last winter, SRUK led a piece of research in partnership with Professor Ariane Herrick, which aimed to build our understanding of the effect of calcinosis on people with scleroderma. We are thrilled to announce that the findings, which our community contributed to, have been published in the journal ‘Rheumatology.’ Read on to find out more about what we learned!
Wednesday 8th March 2023
Ahead of the Chancellor’s Spring Budget and statement on 15th March we are delighted that Shadow Business Minister and MP for Feltham and Heston, Seema Malhotra, has joined our campaign to keep heating affordable for those living with Raynaud’s. SRUK is calling for government action after finding that many people with Raynaud’s, who typically rely on their heating to prevent painful attacks, are struggling with the high cost of energy.
Friday 25th March 2022
On the 17th March 2022 the UK’s Medicine and Health products Regulation Agency (MHRA) approved a new drug, Evusheld, for the prevention of COVID-19 infection.
Thursday 10th March 2022
Can you imagine a future where we will be able to eliminate trial and error in prescribing medications by predicting the best treatment for a person’s scleroderma before they even receive it! The winning proposal of the SRUK/ WSF Stratified Medicine of the Future Award aspires to make this a reality.
Friday 19th March 2021
Clinical trials are the only way to ensure that new treatments are effective. But how exactly does the process work? FInd out why 'outcome measures’ and ‘endpoints’ are crucial, and how SRUK funding is playing a key role in improving the measures used in treatments for scleroderma.
Thursday 5th March 2020
Advice from Public Health England on COVID-19 to help you understand the implications if you have scleroderma and Raynaud's.
Friday 29th March 2019
At the end of 2018 at SRUK we paused to read the many reasons people had given for supporting the charity during the year. We were humbled to see that more than half of everyone that donates to us is honouring the memory of a loved one or friend.
Tuesday 26th March 2019
A lot of us know that scleroderma affects 5 times more women than it does men. What many people may not realise is that there is significant evidence from the United States to suggest that the condition affects more African Americans and Native Americans.
