Wednesday 16th November 2022
“I’m terrified of the weather getting colder as anything below 20 degrees in the house triggers a Raynaud’s attack and I feel very unwell with it.” Joy shares her fears of painful Raynaud’s attacks this winter
Wednesday 29th June 2022
Georgina Foster is an Art Historian and has written this piece especially for World Scleroderma Day to celebrate the great artist Paul Klee, who she admires very much and who also had scleroderma.
Friday 16th July 2021
Systemic sclerosis-associated pulmonary arterial hypertension (SSC-PAH) occurs when fibrosis causes the walls of the pulmonary arteries to thicken, raising their blood pressure and placing additional strain upon the heart. The early signs of SSc-PAH include persistent breathlessness, that may be so mild at first that you hardly notice it. If this sounds familiar, tell your doctor.
Thursday 24th June 2021
"A diagnosis, no matter what diagnosis, can be bad news but also good news. For most of us, the diagnosis is a relief. Now we can team up with others just like us, and the best teams are via the patient organizations. We can start a treatment; we are ready to fight back."
Wednesday 18th November 2020
A little change really can make a big difference. How we spend our days actually has a massive impact upon our health and wellbeing, and by making a few simple adjustments to your daily routine, you can improve your quality of life. So what would you like to change? We have everything you need.
Tuesday 21st May 2019
Here's Hannah's story of how overlapping diagnoses of lichen sclerosis, localised scleroderma, hypermobility, fibromyalgia and irritable bowel syndrome changed her life forever.
Friday 14th December 2018
Isla’s story is part two of the second piece in our #RareTogether series of articles written by our community. She describes her personal journey with scleroderma and the difficult challenges her condition has presented.
Tuesday 27th November 2018
We should all be aiming towards a healthy diet, but people living with scleroderma should take some special care to look after themselves. We've put together some helpful dietary recommendations for people with scleroderma.
Friday 23rd November 2018
Read Julie's story of caring for her daughter Isla. The second piece in our #RareTogether series.
Tuesday 20th November 2018
Carrie’s story is the first in a series of articles written by our community that describe their personal journey with both scleroderma and Raynaud’s. Keep an eye out for more articles here.
