Wednesday 16th November 2022

Joy's Story

“I’m terrified of the weather getting colder as anything below 20 degrees in the house triggers a Raynaud’s attack and I feel very unwell with it.” Joy shares her fears of painful Raynaud’s attacks this winter

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Wednesday 29th June 2022

Creativity Through Scleroderma

Georgina Foster is an Art Historian and has written this piece especially for World Scleroderma Day to celebrate the great artist Paul Klee, who she admires very much and who also had scleroderma.

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Thursday 24th June 2021

Annelise's scleroderma story

"A diagnosis, no matter what diagnosis, can be bad news but also good news. For most of us, the diagnosis is a relief. Now we can team up with others just like us, and the best teams are via the patient organizations. We can start a treatment; we are ready to fight back."

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Wednesday 18th November 2020

Brand new days

A little change really can make a big difference. How we spend our days actually has a massive impact upon our health and wellbeing, and by making a few simple adjustments to your daily routine, you can improve your quality of life. So what would you like to change? We have everything you need.

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Tuesday 27th November 2018

Eating Well: Dietary recommendations for scleroderma

We should all be aiming towards a healthy diet, but people living with scleroderma should take some special care to look after themselves. We've put together some helpful dietary recommendations for people with scleroderma.

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Friday 23rd November 2018

Rare Together: Isla the smiler

Read Julie's story of caring for her daughter Isla. The second piece in our #RareTogether series.

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Thursday 15th November 2018

5 tips for staying healthy this winter

Staying Healthy in the cold can be especially hard when living with Scleroderma and Raynaud’s. Here are some top tips for keeping warm with your conditions this winter.

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Monday 12th November 2018

7 handy hints for keeping warm this winter

Keeping warm in winter, for many, is often not as easy as turning up the heater. Here are some helpful tips that will prevent illness worsening in the colder months and keep your body healthy.

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Monday 24th July 2017

Sian talks about helpful hints for looking after your feet

Sian talks about helpful hints for looking after your feet

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Monday 26th June 2017

Find out what makes Sian happy

Sian is busy making her wedding plans

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