Friday 17th June 2022
Both of Alison's daughters have scleroderma, and having experienced the lack of understanding around the condition, she set out to help SRUK create a guide to scleroderma for schools.
Monday 31st January 2022
Dorset mum says even supermarket trips can be painful: "I feel the cold a lot and struggle with things like going to the supermarket, especially visiting the cold aisles..."
Friday 17th January 2020
At SRUK’s Regional Conference in Glasgow, physiotherapist Will Gregory presented the latest research within this field as well as his recommendations for helpful exercises that could be performed.
Tuesday 7th January 2020
For patients with scleroderma and Raynaud’s, the winter season can be tricky to navigate with dry and sensitive skin. When the cold weather starts to ravage joints, skin and more, maintaining a high quality of life is important for keeping us grounded!
Wednesday 4th December 2019
To give you a little insight into how scleroderma and Raynaud's can impact a person’s quality of life, we asked a few of our community members to share their experiences.
Wednesday 27th November 2019
Many things can impact the quality of a person’s life, especially if you are living with a long-term chronic condition like scleroderma or Raynaud’s phenomenon. There are many ways to help manage the conditions, including better nutrition and exercise.
Tuesday 1st October 2019
Proud mum Lizzi Hooks, 38, has lived with Raynaud’s phenomenon for most of her life, following self-diagnosis at the age of 14. Lizzi has told us her story to share how she manages daily tasks when her fingers fail her.
Friday 6th September 2019
Many of our community will understand the difficulties that come with trying to secure disability benefits. As scleroderma is still a little known illness, it can take some hard work to secure the benefits you are entitled to. To help you figure out how to approach the process, we’ve asked members of our community to share their experiences.
Wednesday 14th August 2019
As a charity, our community of fundraisers are crucial to the work that we do. We are shining a spotlight on two fundraisers who are particularly passionate about the importance of early detection.
Friday 2nd August 2019
For patients with scleroderma, early detection is crucial. It can make a world of difference when fighting a disease as unpredictable as this one. In order to highlight the importance of early detection, we have collated anecdotes from our community members about their experiences with early detection, or lack thereof.
