Thursday 4th October 2018
Many people find physiotherapy incredibly useful in their fight against the symptoms of scleroderma. Below are some easy exercises for the areas of the body that many find the most beneficial to help manage pain and improve mobility.
Thursday 27th September 2018
Lucy Sephton, diagnosed with scleroderma 16 years ago, talks about how proud she is of her daughter for raising a staggering £4,388 for SRUK by chopping her hair for charity.
Tuesday 25th September 2018
SRUK have made a significant contribution in providing funding for this two-year pilot study, which is well underway. Initial results are promising, and the success of the study means that the implantable loop recorder can then be examined through a wider clinical study.
Friday 21st September 2018
Dr. Victoria Flower, based in Bath, is working on a new research project, fully entitled, ‘The role of Hypoxia Inducible Factor and Vascular Endothelial Growth Factor in microvascular dysfunction and fibrosis in Systemic sclerosis’, to examine factors that may be affecting blood flow in people with Scleroderma and Raynaud’s.
Monday 17th September 2018
Scleroderma & Raynaud’s UK (SRUK) has been awarded a consultation with The Difference Collective to enhance current communications. SRUK will get the chance to pick the brains of up to 10 of the Collectives top healthcare comms experts during a free one-hour brainstorming session.
Friday 14th September 2018
A team led by Sabrina Munir at King’s College London has found that the presence of single nucleotide polymorphisms (SNPs) may be indicative of Raynaud's Phenomenon or act as a measure of how likely the individual is to develop the condition.
Thursday 6th September 2018
Initially diagnosed with fibromyalgia, Lauren had actually developed a very aggressive form of scleroderma. Her condition worsened and after a harrowing 3 weeks in intensive care, she died of acute renal crisis and accelerated hypertension. Her father Philip tells her story.
Tuesday 28th August 2018
Funding important research into medical conditions is a crucial way in which medical research charities improve people’s lives. When a condition is rare like scleroderma, then that research becomes even more vital.
Friday 24th August 2018
Slightly older ears may remember the days of ‘CREST’, the now outdated term for Scleroderma. But what did ‘CREST’ mean? Why was it used? And why was the term abandoned in mainstream medical practice?
Monday 20th August 2018
It’s been well established that women are more likely to be affected by Raynaud’s phenomenon than men but why? Let's look into the reasons behind this.
