Friday 3rd July 2020
Researchers funded by the Scleroderma Clinicals Trials Consortium (SCTC) sought to understand how digital ulcers can affect a person’s life, discussing pain, aggravating factors and practical measures taken when ulcers develop.
Friday 26th June 2020
Lenabasum is a synthetic drug that activates a certain receptor involved in the immune system and in the activity of fibroblasts, which drive fibrosis (scarring), and is particularly useful for diffuse cutaneous scleroderma.
Thursday 28th May 2020
What is it really like to grow up with scleroderma? We look at the various ways that this condition can affect our children, both physically and emotionally, as they navigate the path to adulthood.
Thursday 28th May 2020
With around 28 million adults now living with chronic pain in the UK, it has become something of a silent epidemic. There are however a number of ways to help reduce its impact upon your life.
Tuesday 28th April 2020
Nintedanib, a drug that slows the rate of lung fibrosis, has been approved as a treatment for individuals with systemic sclerosis-associated interstitial lung disease, the first option to have been made available.
Friday 17th April 2020
Remaining physically active is important for everyone, but sometimes this is very challenging for the SRUK community. A study set up by the Scleroderma Patient Intervention Network sought to understand what the major barriers and facilitators to exercise are.
Thursday 5th March 2020
Advice from Public Health England on COVID-19 to help you understand the implications if you have scleroderma and Raynaud's.
Friday 14th February 2020
A survey released today for Raynaud’s Awareness Month shows that 61% of women surveyed who admit to secretly adjusting the heating in their home, turn it up or on, while 56% of men who do the same acknowledge turning it down or off on the sly.
Monday 10th February 2020
Despite Raynaud’s syndrome being a relatively common condition, with up to 10 million people in the UK diagnosed, several questions remain about the nature of the disease. We've addressed some of the most frequently asked ones here.
Tuesday 4th February 2020
With winter now upon us – a bad season for Raynaud’s patients – we asked members of our community for tips to avoid triggers and manage their symptoms.
