Friday 22nd March 2019
Meet #TeamSRUK for the London Landmarks Half Marathon 2019
This is the first year SRUK are taking part of the London Landmarks Half Marathon and here are our 10 runners
Friday 22nd March 2019
Meet the Scientist - Dr Elizabeth Renzoni
Dr. Elizabeth Renzoni has been working as a consultant respiratory physician at Royal Brompton Hospital in the ILD Unit and an honorary senior lecturer at Imperial College London since 2006. We spoke to her about her career in research.
Wednesday 20th March 2019
A Guide to Iloprost Treatment
Iloprost is used to treat a range of conditions, such as scleroderma, Raynaud's phenomenon, pulmonary hypertension and other diseases where blood vessels are constricted. By relaxing the blood vessels, it makes it easier for blood to flow through, helping to limit the symptoms.
Thursday 14th March 2019
Meet the Scientist - Professor David Abraham
SRUK recently funded David and his team to investigate factors that contribute to the development of calcinosis in scleroderma patients. Find out more about him in our new Meet the Scientist series.
Tuesday 12th March 2019
Meet the Scientist - Professor Rizgar Mageed
Here is a little insight into the lives of some of the researchers we fund, what keeps them in the laboratory and the future of research.
Friday 8th March 2019
Sylvia’s story of using diet and exercise to thrive with scleroderma
Here’s Sylvia Herring’s story of how she used diet and exercise to help cope with her recent diagnosis of systemic scleroderma.
Friday 23rd March 2018
11 year old Daisy fundraises for SRUK
Daisy cuts all her hair off to fundraise for her mum
Friday 31st March 2017
Our 1st Birthday
On the 31st March 2017, SRUK celebrates its first year of existence following the merger of the Raynaud's & Scleroderma Association (RSA) and Scleroderma Society.
Tuesday 28th March 2017
Westminster Hall Debate on the UK Strategy for Rare Diseases
Today, MPs will meet in Parliament to debate the implementation of the UK Strategy for Rare Diseases in England. This is a unique opportunity for us to raise awareness of the problems facing patients and families affected by rare conditions in accessing a timely diagnosis, coordinated care and appropriate treatment.
Friday 24th March 2017
Nailfold Capillaroscopy Research in Raynaud’s
In spring last year SRUK awarded its first research grants, following on from the work of the Raynaud’s and Scleroderma Association and Scleroderma Society, which had been supporting research into both conditions in this way since the 1980s.