Friday 22nd April 2022
Developing the Next Generation of Medicine
SRUK co-funds a MRC Clinical Research Training Fellowship to advance research into treatments for interstitial lung disease.
Wednesday 20th April 2022
Grant Call: Quality of Life
Ongoing research towards developing new treatments and therapies has a cumulative effect in improving quality of life, but can the problem be addressed directly?
Friday 23rd April 2021
Gut feelings: how what you eat could be affecting your health - and what to do about it
How does our everyday diet influence how we feel, and could a few simple changes really make a difference?
Friday 16th April 2021
A Design for Life: is scleroderma in the genes?
What is the link between our genetic code and developing scleroderma? Researchers from Spain have recently studied genetic alterations and established a connection with the pathways that dictate the clinical features of scleroderma. The study is significant because increasing our understanding of the genetic pathway could be a faster route towards identifying effective new therapies for this complex condition.
Thursday 1st April 2021
Open Research - revolutionising the publishing process for SRUK research
SRUK is working with our partners at the Association of Medical Research Charities via their new Open Research Platform, to revolutionise the publishing process for our researchers. This will enable SRUK-funded research groups to publish their work in a streamlined and cost-effective way, with the ultimate goal of translating new knowledge into effective treatments for people living with scleroderma.
Tuesday 28th April 2020
Approval of nintedanib for systemic sclerosis-associated interstitial lung disease
Nintedanib, a drug that slows the rate of lung fibrosis, has been approved as a treatment for individuals with systemic sclerosis-associated interstitial lung disease, the first option to have been made available.
Friday 17th April 2020
Identifying barriers to exercise
Remaining physically active is important for everyone, but sometimes this is very challenging for the SRUK community. A study set up by the Scleroderma Patient Intervention Network sought to understand what the major barriers and facilitators to exercise are.
Thursday 25th April 2019
Registries and biobanks - what is the appeal?
Resources such as registries and biobanks have become increasingly valuable for the research of rare conditions, by building up a sample size from a wide range of locations, different age groups and so forth. Several charities and academic organisations are directing efforts towards the implementation of such resources.
Tuesday 23rd April 2019
New training programme launched for SRUK support group leaders
SRUK understands the vital role that a support network can play in a person’s medical journey, whether that comprises of family members, friends or the medical team, and regardless of the diagnosis. To facilitate the provision of support networks, SRUK has 8 support groups in the UK; the leaders were recently approached for training offered by the Scleroderma Patient-centred Intervention Network.
Thursday 18th April 2019
How we’re raising awareness in 2019
Read all about our two annual awareness campaigns in 2019. February's Raynaud's Awareness Month was a massive success, and we need your help to help us make as big a splash in June!