Wednesday 28th September 2016

Nintedanib Receives Orphan Drug Designation for Systemic Sclerosis

The FDA has granted Orphan Drug Designation to Boehringer Ingelheim’s nintedanib for the treatment of systemic sclerosis (SSc), also known as scleroderma, including associated interstitial lung disease (SSc-ILD). - See more at: http://www.pharmacytimes.com/product-news/nintedanib-receives-orphan-drug-designation-for-systemic-sclerosis#sthash.5ACj39Ga.dpuf

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Wednesday 14th September 2016

Edgar Stene Prize Competition 2017 launched

The Edgar Stene Prize Competition 2017 is for people with rheumatic and musculoskeletal diseases (RMDs) to write about their personal experience and submit an essay by 31st December 2016. Launched by National organisations of people with arthritis/rheumatism (EULAR) and across Europe (PARE).

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Monday 5th September 2016

SRUK First Annual Conference

Our first ever Annual Conference was held in August 2016 and was a great success. It brought together key industry leaders and medical professionals to present on the latest research, methods of diagnosis, treatments and managing the condition.

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Monday 5th September 2016

Fantastic community event in Nottingham

Nottingham local councillor Corall Jenkins recently held a brilliant community event in memory of her husband Stan, who sadly passed away from scleroderma.

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Sunday 4th September 2016

Scleroderma Clinical Research Study Enrolment

This information is intended for residents of the UK Now Enroling Patients with Diffuse Cutaneous Systemic Sclerosis (dcSSc) also called Scleroderma Have you or someone you know been diagnosed with diffuse cutaneous systemic sclerosis? Would you/they be interested in participating in a clinical research study?

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