Tuesday 30th May 2017
Sian describes her scleroderma pain through poetry
For this month's blog excerpt I wanted to include some of my poetry from over the years and decided to show one I've written about the pain, physical and mental.
Tuesday 16th May 2017
AMRC membership boosts our investment in research
We at SRUK have been working towards becoming members of the Association of Medical Research Charities (AMRC) over the past year and are pleased to announce that our application was accepted at the end of April. This is a great achievement for the charity, as membership is the hallmark of quality research funding and considerably increases the value of grants that we award.
Friday 12th May 2017
Anticentromere antibodies associated with better outcomes
Organ involvement occurs later in people with diffuse scleroderma and anticentromere antibodies (ACAs).
Thursday 11th May 2017
Drugs target cell pathways altered in scleroderma
Evidence suggests drugs in scleroderma trials have beneficial effects on skin, lung function and the heart.
Tuesday 9th May 2017
Mental Health Awareness Week
Friday 5th May 2017
Prescription charges and people with long-term conditions
We're calling for a clear commitment from the government to review and reform the medical exemption criteria for prescription charges, which was compiled in 1968 and will be 50 years old next year, to include all those with long-term conditions.
Wednesday 3rd May 2017
EULAR 2017 - Annual European Congress of Rheumatology in Madrid
EULAR 2017 - Annual European Congress of Rheumatology in Madrid
Wednesday 3rd May 2017
Looking after your mental health
There is a link between long-term physical health conditions, such as Raynaud’s phenomenon and scleroderma, and mental health problems such as depression, is well known. According to the Department of Health, more than 15 million people in England – 30% of the population – have one or more long-term conditions,1 and evidence suggests at least 30% of people with a long-term physical health condition also have a mental health condition.2 If you are struggling, you are therefore not alone.