Thursday 28th February 2019

New study suggests low vitamin D levels linked to scleroderma

Vitamin D deficiency has been linked to several autoimmune diseases, such as rheumatoid arthritis, lupus and multiple sclerosis, and is seen almost universally in patients with systemic sclerosis (SSc). This has garnered significant attention, alongside recent data suggesting that vitamin D plays a role in the functioning of the immune system.

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Tuesday 26th February 2019

Stem cell transplants may be the next new therapy for scleroderma

The results of a study spanning several years indicate that there may be long-term benefits of stem cell transplant in those suffering from severe scleroderma. This multi-centre study by researchers at Dartmouth, alongside other institutions, and led by Dr Jennifer Franks focused on comparing improvements in those treated with cyclophosphamide, the more conventional drug therapy for scleroderma, to those who had undergone a stem cell transplant.

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Thursday 21st February 2019

The impact of Raynaud’s phenomenon on mental health

Despite the drastic impact that Raynaud’s phenomenon can have on an individual’s quality of life, the detrimental effects that the condition may have on mental health are often overlooked.

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Thursday 14th February 2019

Raynaud’s sufferer climbs Mount Kilimanjaro to help raise awareness

Arthur has been living with Raynaud’s since childhood, however, he only received his diagnosis last year. This year he decided to take on Mount Kilimanjaro to fundraise and help raise awareness for SRUK.

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Tuesday 12th February 2019

Participating in research

Anyone can take part in a clinical trial as long as they meet the eligibility criteria. By supporting trials, you will be helping to find the best treatments possible to manage the symptoms and effects of scleroderma and Raynaud’s.

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Friday 8th February 2019

The importance of behaviour change interventions in the management of Raynaud’s

Advice concerning limiting stress by practicing mindfulness is commonly given by doctors, alongside reducing exposure to the cold, in order to prevent Raynaud’s attacks. But are these self-management techniques backed up by research?

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Friday 1st February 2019

Rare Together: My fear of cold

This is the third piece in our #RareTogether series of articles by our community. Sara Szigeti tells her story of the first Raynaud’s attack she experienced and the challenge of accepting being diagnosed with a lifelong condition.

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