News

Tuesday 19th December 2023

The Mouth in Scleroderma - Tools to Help Dentists Better Understand Your Condition

In 2021 SRUK funded a research project led by Professor Liz Walker, based at the University of Hull, entitled 'Scleroderma in the Mouth: Improving Pathways to Care'. The project focusses on improving oral and dental care in Scleroderma to help improve quality of life. The team have recently produced some useful materials to foster greater awareness of the oral manifestations of Scleroderma amongst dentists. Read on to access a video and information card which you can show to your dentist to help them learn more about your condition and how it affects your oral health.

Monday 18th December 2023

EULAR publish new recommendations for non-pharmacological management in Systemic Sclerosis

EULAR have recently developed new recommendations regarding non-pharmacological management of Systemic Sclerosis. Non-pharmacological management approaches aim to ease disease symptoms and improve quality of life, or help to prevent a patient’s condition from worsening. By working with healthcare professionals and patients, EULAR have published a new set of recommendations, which have the potential to improve the management of Scleroderma and the quality of life of patients. Read on to find out more!

Monday 5th December 2022

The MINIMISE-Pilot study: seeking to minimise disease progression in limited scleroderma

Do you have limited systemic sclerosis and live in the UK? Read on to find out how you could take part in a clinical trial of a treatment for the condition.

Friday 31st December 2021

Fast-forward to 2040: What does the future hold for Scleroderma?

As we come to the end of 2021, SRUK have been thinking about the new year, and the one after that… and the one after that. In just 12 months, we have seen huge change across the world, which got us thinking, what could things look like in 20 years?

Thursday 16th December 2021

A Gut Feeling: The Microbiome and Scleroderma

At the 2021 SRUK Virtual Conference Dr Elizabeth Volkmann presented a very popular session on Understanding Gastrointestinal Involvement in Scleroderma – where she introduced the concept of how a person’s microbiome might influence their condition. This article takes a deeper dive into the world of the microbiome.

Friday 10th December 2021

Increasing access to COVID-19 treatment for those most vulnerable

On the 8th December the UK government announced several measures to ensure those who are most at risk from COVID-19 are given access to new treatments within their community, and where possible, within their own home.

Tuesday 11th December 2018

Do certain genes lead to vascular involvement in scleroderma?

Professor Chris Denton and his team have set out to uncover why some individuals with systemic sclerosis suffer from digital ulcers whereas others suffer from vascular complications. By assessing the gene variants involved, they have identified a group of genes that may be linked to cardiovascular disease.

Wednesday 5th December 2018

Nailfold Capillaroscopy: A technique to enable earlier intervention

In 2010, SRUK awarded a grant to Professor Arianne Herrick and her team at the University of Manchester for research to be conducted on nailfold capillaroscopy, which provides rheumatologists with a non-invasive window into the circulation in the nailbeds of patients.

Monday 3rd December 2018

A study into the relationship between Systemic Sclerosis and cancer

The relationship between systemic sclerosis (SSc) and cancer, an idea first presented in the 1950s, is currently being examined in an epidemiological study funded by SRUK and led by Dr John Pauling at the University of Bath.

Tuesday 13th December 2016

UK Strategy for Rare Diseases