News

Tuesday 19th December 2023

The Mouth in Scleroderma - Tools to Help Dentists Better Understand Your Condition

In 2021 SRUK funded a research project led by Professor Liz Walker, based at the University of Hull, entitled 'Scleroderma in the Mouth: Improving Pathways to Care'. The project focusses on improving oral and dental care in Scleroderma to help improve quality of life. The team have recently produced some useful materials to foster greater awareness of the oral manifestations of Scleroderma amongst dentists. Read on to access a video and information card which you can show to your dentist to help them learn more about your condition and how it affects your oral health.

Read Article

Monday 18th December 2023

EULAR publish new recommendations for non-pharmacological management in Systemic Sclerosis

EULAR have recently developed new recommendations regarding non-pharmacological management of Systemic Sclerosis. Non-pharmacological management approaches aim to ease disease symptoms and improve quality of life, or help to prevent a patient’s condition from worsening. By working with healthcare professionals and patients, EULAR have published a new set of recommendations, which have the potential to improve the management of Scleroderma and the quality of life of patients. Read on to find out more!

Read Article

Monday 5th December 2022

The MINIMISE-Pilot study: seeking to minimise disease progression in limited scleroderma

Do you have limited systemic sclerosis and live in the UK? Read on to find out how you could take part in a clinical trial of a treatment for the condition.

Read Article

Friday 31st December 2021

Fast-forward to 2040: What does the future hold for Scleroderma?

As we come to the end of 2021, SRUK have been thinking about the new year, and the one after that… and the one after that. In just 12 months, we have seen huge change across the world, which got us thinking, what could things look like in 20 years?

Read Article

Thursday 16th December 2021

A Gut Feeling: The Microbiome and Scleroderma

At the 2021 SRUK Virtual Conference Dr Elizabeth Volkmann presented a very popular session on Understanding Gastrointestinal Involvement in Scleroderma – where she introduced the concept of how a person’s microbiome might influence their condition. This article takes a deeper dive into the world of the microbiome.

Read Article

Friday 10th December 2021

Increasing access to COVID-19 treatment for those most vulnerable

On the 8th December the UK government announced several measures to ensure those who are most at risk from COVID-19 are given access to new treatments within their community, and where possible, within their own home.

Read Article

Thursday 12th December 2019

Get ready for Raynaud’s Awareness Month - February 2020

Our 2019 Raynaud’s Awareness Month in February was a great success, with over 25,000 people taking our online Raynaud’s test. We want to do even better in 2020 and we need your help.

Read Article

Monday 9th December 2019

Thank you for taking part in our patient survey

Back in May 2019, we asked you to take part in a survey to help us understand how we can better serve our community of people living with scleroderma and Raynaud’s. We'd like to thank over 1,000 of you for completing the survey.

Read Article

Wednesday 4th December 2019

How scleroderma and Raynaud’s impact quality of life

To give you a little insight into how scleroderma and Raynaud's can impact a person’s quality of life, we asked a few of our community members to share their experiences.

Read Article

Friday 28th December 2018

Four New Research Grants: Our investment in research this year

We are committed to investing even more into the most ground breaking and innovative research so that our community can feel the benefit of research sooner. As part of this commitment, we are very pleased to announce that we have awarded four exciting new grants in June 2018.

Read Article