News

Tuesday 28th November 2023

Sharing Data to Improve Lives: The SRUK Patient Registry Survey

SRUK is developing a Patient Registry, with the aim of improving outcomes for people diagnosed with Scleroderma or Raynaud's. Our Registry will be a secure, anonymous database, containing health information about people living with the conditions. It will be used to improve our understanding of Scleroderma and Raynaud's and how different people are affected over time, to help accelerate research into new and better treatments designed to improve quality of life. Read on to find out what we learned through the SRUK Patient Registry Survey, and how it will help shape our Patient Registry.

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Wednesday 22nd November 2023

SRUK's response to the Autumn Statement

SRUK asks the Chancellor to consider the impact of changes to disability benefits on people with scleroderma and we renew our call for more support with energy bills for those that need it most.

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Tuesday 21st November 2023

Government must expand Cost of Living Payments to protect health of those living with Raynaud's Phenomenon

Ahead of the Chancellor's Autumn Statement we are calling on the government to expand its Cost of Living Payment criteria to include people living with Raynaud’s Phenomenon.

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Tuesday 29th November 2022

New study could help find a treatment for scleroderma-related fibrosis

Do you have diffuse systemic sclerosis and live in the UK? Read on to find out how you could take part in a new study which could inform a clinical trial of a new treatment!

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Monday 21st November 2022

Treating Fibrosis in Scleroderma: SRUK-funded study lays groundwork for potential new treatment for scleroderma-related skin fibrosis

A recently completed study funded by SRUK in 2018, led by Professor Richard Stratton at the Royal Free Hospital, has laid the groundwork for a potential new treatment for scleroderma-related skin fibrosis, which could enable effective and painless treatment of fibrosis in people living with scleroderma.

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Thursday 17th November 2022

PEOPLE WITH RAYNAUD’S ONCE AGAIN IGNORED BY GOVERNMENT, SAYS SRUK

Scleroderma and Raynaud’s UK (SRUK) has expressed its disappointment that people with Raynaud’s have been ignored once again by the government.

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Wednesday 16th November 2022

Joy's Story

“I’m terrified of the weather getting colder as anything below 20 degrees in the house triggers a Raynaud’s attack and I feel very unwell with it.” Joy shares her fears of painful Raynaud’s attacks this winter

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Tuesday 15th November 2022

Helen Lewis's Story

“My Raynaud’s has definitely gotten worse this year. I used to have an attack a couple of times a week, particularly if I was outside in the cold, but now it happens every day, even in my own house.”

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Monday 7th November 2022

Government Must Act on Cost of Living to Protect Health of Millions With Raynaud's, Says SRUK

SRUK Survey highlights the devastating impact of the cost-of-living crisis and high energy bills for people with Raynaud's.

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Friday 4th November 2022

RAIRDA Report - Resetting the Balance

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) which SRUK is a member of, has released a report highlighting ‘alarming disparities in the quality of care and treatment’ received by people living with rare autoimmune rheumatic diseases (RAIRDs).

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