Wednesday 22nd November 2023

SRUK's response to the Autumn Statement

SRUK asks the Chancellor to consider the impact of changes to disability benefits on people with scleroderma and we renew our call for more support with energy bills for those that need it most.

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Tuesday 21st November 2023

Government must expand Cost of Living Payments to protect health of those living with Raynaud's Phenomenon

Ahead of the Chancellor's Autumn Statement we are calling on the government to expand its Cost of Living Payment criteria to include people living with Raynaud’s Phenomenon.

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Thursday 17th November 2022

PEOPLE WITH RAYNAUD’S ONCE AGAIN IGNORED BY GOVERNMENT, SAYS SRUK

Scleroderma and Raynaud’s UK (SRUK) has expressed its disappointment that people with Raynaud’s have been ignored once again by the government.

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Tuesday 15th November 2022

Helen Lewis's Story

“My Raynaud’s has definitely gotten worse this year. I used to have an attack a couple of times a week, particularly if I was outside in the cold, but now it happens every day, even in my own house.”

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Monday 7th November 2022

Government Must Act on Cost of Living to Protect Health of Millions With Raynaud's, Says SRUK

SRUK Survey highlights the devastating impact of the cost-of-living crisis and high energy bills for people with Raynaud's.

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Friday 4th November 2022

RAIRDA Report - Resetting the Balance

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) which SRUK is a member of, has released a report highlighting ‘alarming disparities in the quality of care and treatment’ received by people living with rare autoimmune rheumatic diseases (RAIRDs).

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Thursday 21st November 2019

Early Detection: A history of funding from SRUK

SRUK has long recognised that detecting the conditions earlier is key to ensuring that people live longer and better lives, which is why we fund studies to improve our understanding of the early warning signs of the conditions.

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Tuesday 19th November 2019

Quality of Life: A history of funding from SRUK

Here, we highlight some examples of research projects that have been funded by SRUK in the past which focus on improving quality of life for patients.

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Monday 28th November 2016

Get involved in Rare Diseases Day and help represent Scleroderma

SRUK will be supporting Rare Diseases Day February 2017.

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