Monday 3rd October 2016

Scleroderma blog by Alison Juggler

Scleroderma is a rare disease that affects the immune system. Your body starts to attack healthy tissue and produce excess collagen, affecting the skin, joints, blood vessels, tendons and internal organs (eek!). The resulting scarring and stiffness varies in severity, but it can be disabling and even life-threatening when you have the most serious type of of scleroderma: systemic. Yep, that’s what my daughter

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Wednesday 14th September 2016

Edgar Stene Prize Competition 2017 launched

The Edgar Stene Prize Competition 2017 is for people with rheumatic and musculoskeletal diseases (RMDs) to write about their personal experience and submit an essay by 31st December 2016. Launched by National organisations of people with arthritis/rheumatism (EULAR) and across Europe (PARE).

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Thursday 25th August 2016

Finding strength in numbers

“Strength in numbers”: an oft used phrase, but like many such clichés it has evolved to mean different things to different people. For me, as Chief Executive of Scleroderma & Raynaud's UK (SRUK), the only UK Charity dedicated to improving the lives of people with these debilitating autoimmune conditions, ‘strength in numbers’ has multiple meanings. Read Sue Farrington's interview with National Voices.

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Wednesday 25th May 2016

Everyone has a story, here's mine...

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Saturday 21st May 2016

Chemotherapy Isn't Only for Cancer

When you hear the word chemotherapy what immediately comes to mind? Cancer. Bald. Nausea. Vomiting. Infusions. Sterility. Bone Pain?

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Thursday 19th May 2016

My Experiences of Living with Raynaud`s

I have had primary Raynaud`s since I was small and that was before my teenage years began. The symptoms I have always had are cold hands and feet. Being so young I never understood why I was so often cold.

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Friday 15th April 2016

How I Manage My Auto Immune Diseases Without Medication

Well! It’s not easy but I have managed it with a few changes over the years to my nutrition and a good exercise plan.

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