Tuesday 9th August 2022

The Decode Scleroderma Study

72 people have signed up for this new trial for people living with diffuse scleroderma and now this clinical study, to test a new investigational drug for use in Diffuse Scleroderma, is ready to start.

Read Article

Thursday 24th June 2021

The CRISTAL Index

SRUK funding is playing a key role in improving how we determine the success of new treatments in clinical trials. These projects aim to better inform researchers of the impact of potential therapies, ultimately improving wellbeing and quality of life for people living with scleroderma.

Read Article

Thursday 20th May 2021

Celebrating World Clinical Trials Day!

20 May 2021 is World Clinical Trials Day to mark the anniversary of the first-ever trial that was conducted in 1747. Today, clinical trials are vital in determining the safety and efficacy of new treatments all over the world. But what happens in a clinical trial, and could you take part?

Read Article

Tuesday 6th August 2019

Recent findings from SRUK-funded study of wax-bath treatments for scleroderma published

The musculoskeletal features of systemic sclerosis (SSc) are a major cause of disability, causing limitations to movement and function. The study aim was to compare the effects of daily hand exercises with or without daily home wax bath hand treatment in patients with SSc.

Read Article

Friday 31st May 2019

New internal regulator of the immune system discovered in an SRUK-funded study

SRUK are thrilled to see the results of an investigation, undertaken by an international team of researchers and clinicians, where there has been the identification of a new internal regulator which helps to control the body’s immune response.

Read Article

Friday 24th May 2019

Boehringer Ingelheim publish new data on experimental ILD drug

Approximately 25% of people who live with systemic sclerosis (SSc) also develop significant pulmonary (lung) involvement within 3 years of diagnosis. Nintedanib could make a considerable difference to the lives of people with this rare and often life-threatening disease.

Read Article

Friday 12th April 2019

Do we need a new way to assess Raynaud’s Phenomenon in clinical trials?

To understand the efficacy of treatment in clinical trials, participants are normally given structured diaries as a way of recording their own observations. Almost 30 years on from these measures being developed, there are questions about whether they are still fit for purpose in today’s landscape

Read Article

Tuesday 12th February 2019

Participating in research

Anyone can take part in a clinical trial as long as they meet the eligibility criteria. By supporting trials, you will be helping to find the best treatments possible to manage the symptoms and effects of scleroderma and Raynaud’s.

Read Article

Friday 25th January 2019

Can herbal medicines help Raynaud’s phenomenon symptoms?

Herbal remedies have been used to tackle Raynaud's symptoms for many years in Asia, where they're believed to aid circulation. A review by the College of Korean Medicine focused on evaluating the efficacy of herbal medicines such as cinnamon and dried ginger.

Read Article

Monday 22nd October 2018

SRUK commits to funding a pre-clinical study to evaluate a novel and innovative therapy to treat fibrosis

Skin fibrosis can be a severe and life limiting complication of scleroderma, with a dramatic impact on quality of life. It can be progressive and painful, leading to permanent ulcers and restriction of movement. Being able to limit the progression of skin fibrosis, and ultimately, reverse the effects are a key priority for SRUK and our community.

Read Article