News

Friday 15th September 2023

The Perfect Patient Information Journey in Scleroderma

Scleroderma can be complex and unpredictable, affecting people in many different ways. But what might the scleroderma journey look like? And why is it so important to find out? Working with the Patient information Forum, SRUK has identified this journey and created some new information resources for everyone affected by scleroderma. These materials are designed to reassure people they are not alone, and to help them access reliable information.

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Wednesday 16th November 2022

Joy's Story

“I’m terrified of the weather getting colder as anything below 20 degrees in the house triggers a Raynaud’s attack and I feel very unwell with it.” Joy shares her fears of painful Raynaud’s attacks this winter

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Wednesday 29th June 2022

Creativity Through Scleroderma

Georgina Foster is an Art Historian and has written this piece especially for World Scleroderma Day to celebrate the great artist Paul Klee, who she admires very much and who also had scleroderma.

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Friday 14th January 2022

Bring on the good days

Are you having a good day? How we spend our time can have a significant impact on how we feel. We talked to occupational therapist Lucy Reeve about some of the small changes that could make a big difference to our wellbeing and help make every day a little bit better.

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Thursday 16th September 2021

Living with lung disease: Georgina's story

September is Pulmonary Fibrosis Awareness Month. Pulmonary fibrosis (PF) is also known as interstitial lung disease (ILD) and is the most common form of lung involvement in SSc. This can occur at any time, although early detection often leads to much better outcomes. This is Georgina’s story of living with lung disease, which has a dramatic impact upon her life.

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Thursday 24th June 2021

Annelise's scleroderma story

"A diagnosis, no matter what diagnosis, can be bad news but also good news. For most of us, the diagnosis is a relief. Now we can team up with others just like us, and the best teams are via the patient organizations. We can start a treatment; we are ready to fight back."

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Friday 23rd April 2021

Gut feelings: how what you eat could be affecting your health - and what to do about it

How does our everyday diet influence how we feel, and could a few simple changes really make a difference?

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Thursday 21st January 2021

Contemplating Comedy - a new book by Jonathan Levitt

A member of our community has published a book! Jonathan Levitt is the author of Contemplating Comedy, which is available now. Written mainly during the first lockdown, this book is packed with humour combined with the author’s own insights, experiences and ideas, all accompanied by a collection of original cartoon illustrations

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Wednesday 18th November 2020

Brand new days

A little change really can make a big difference. How we spend our days actually has a massive impact upon our health and wellbeing, and by making a few simple adjustments to your daily routine, you can improve your quality of life. So what would you like to change? We have everything you need.

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Thursday 24th September 2020

Exploring Acupuncture

Acupuncture is an alternative treatment that comes from ancient, Chinese medicine. An acupuncturist inserts fine needles upon specific points of the body, with the aim of stimulating and balancing the flow of energy. There is some evidence that acupuncture could help to alleviate the symptoms of both Raynaud’s and scleroderma.

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