Wednesday 4th December 2019
To give you a little insight into how scleroderma and Raynaud's can impact a person’s quality of life, we asked a few of our community members to share their experiences.
Wednesday 27th November 2019
Many things can impact the quality of a person’s life, especially if you are living with a long-term chronic condition like scleroderma or Raynaud’s phenomenon. There are many ways to help manage the conditions, including better nutrition and exercise.
Tuesday 1st October 2019
Proud mum Lizzi Hooks, 38, has lived with Raynaud’s phenomenon for most of her life, following self-diagnosis at the age of 14. Lizzi has told us her story to share how she manages daily tasks when her fingers fail her.
Friday 6th September 2019
Many of our community will understand the difficulties that come with trying to secure disability benefits. As scleroderma is still a little known illness, it can take some hard work to secure the benefits you are entitled to. To help you figure out how to approach the process, we’ve asked members of our community to share their experiences.
Wednesday 14th August 2019
As a charity, our community of fundraisers are crucial to the work that we do. We are shining a spotlight on two fundraisers who are particularly passionate about the importance of early detection.
Friday 2nd August 2019
For patients with scleroderma, early detection is crucial. It can make a world of difference when fighting a disease as unpredictable as this one. In order to highlight the importance of early detection, we have collated anecdotes from our community members about their experiences with early detection, or lack thereof.
Tuesday 21st May 2019
Here's Hannah's story of how overlapping diagnoses of lichen sclerosis, localised scleroderma, hypermobility, fibromyalgia and irritable bowel syndrome changed her life forever.
Tuesday 14th May 2019
Travis Munn, ex-professional footballer for Mansfield Town and Boston United, shares his experience of systemic scleroderma after his symptoms forced him to give up his sporting career.
Tuesday 7th May 2019
Read Jane Potter's story of using exercise and her love of sport to fight back against her Raynaud's symptoms.
Wednesday 10th April 2019
It is widely understood that the effects of scleroderma can be extremely debilitating, in severe cases limiting a person’s ability to work, socialise and partake in their favourite hobbies. In these circumstances, it is important that an individual has a strong support network.
