Thursday 25th April 2019
Resources such as registries and biobanks have become increasingly valuable for the research of rare conditions, by building up a sample size from a wide range of locations, different age groups and so forth. Several charities and academic organisations are directing efforts towards the implementation of such resources.
Tuesday 23rd April 2019
SRUK understands the vital role that a support network can play in a person’s medical journey, whether that comprises of family members, friends or the medical team, and regardless of the diagnosis. To facilitate the provision of support networks, SRUK has 8 support groups in the UK; the leaders were recently approached for training offered by the Scleroderma Patient-centred Intervention Network.
Thursday 18th April 2019
Read all about our two annual awareness campaigns in 2019. February's Raynaud's Awareness Month was a massive success, and we need your help to help us make as big a splash in June!
Friday 12th April 2019
To understand the efficacy of treatment in clinical trials, participants are normally given structured diaries as a way of recording their own observations. Almost 30 years on from these measures being developed, there are questions about whether they are still fit for purpose in today’s landscape
Wednesday 10th April 2019
It is widely understood that the effects of scleroderma can be extremely debilitating, in severe cases limiting a person’s ability to work, socialise and partake in their favourite hobbies. In these circumstances, it is important that an individual has a strong support network.
Thursday 4th April 2019
Many scientific investigations concerning scleroderma focus on uncovering more about the processes that contribute to a person presenting symptoms. This is because if the driving factors behind it are defined, treatments can be applied to this area to limit the progression of the condition, either by blocking biological mechanisms or by obstructing involved molecules.
