Friday 31st March 2017
Our 1st Birthday
On the 31st March 2017, SRUK celebrates its first year of existence following the merger of the Raynaud's & Scleroderma Association (RSA) and Scleroderma Society.
Friday 31st March 2017
On the 31st March 2017, SRUK celebrates its first year of existence following the merger of the Raynaud's & Scleroderma Association (RSA) and Scleroderma Society.
Tuesday 28th March 2017
Today, MPs will meet in Parliament to debate the implementation of the UK Strategy for Rare Diseases in England. This is a unique opportunity for us to raise awareness of the problems facing patients and families affected by rare conditions in accessing a timely diagnosis, coordinated care and appropriate treatment.
Friday 24th March 2017
In spring last year SRUK awarded its first research grants, following on from the work of the Raynaud’s and Scleroderma Association and Scleroderma Society, which had been supporting research into both conditions in this way since the 1980s.
Tuesday 21st March 2017
Tuesday 7th March 2017
The Prescription Charges Coalition has launched a survey looking at the ways in which prescription charges affect the lives of people in England with long-term conditions such as Scleroderma and Raynaud’s.