Wednesday 19th July 2023

The OASIS project: SRUK-funded research builds evidence for new methods of skin assessment in Scleroderma

A recently completed SRUK-funded research project, led by Dr Peter Worsley at the University of Southampton, has built evidence for the use of non-invasive tools which can accurately measure the health of the skin in Scleroderma. The findings of the project have the potential to drive forward the use of new, non-invasive skin assessment methods, using tools employed in the assessment of other conditions that affect the skin, which could be an important step towards improving the diagnosis and monitoring of the condition.

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Friday 15th July 2022

Six Months of STAR – the Symptom Tracking App for Raynaud’s

July marks six months since Scleroderma & Raynaud’s UK launched STAR, the Symptom Tracking App for Raynaud’s, which enables members of the SRUK community to track their Raynaud's attacks and directly contribute to essential scientific research into the condition. Here’s a breakdown of what we’ve learnt so far, thanks to the STAR community!

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Thursday 29th July 2021

Could I be at risk? What we know so far about immune responses to the COVID-19 vaccination in those with weakened immune systems

As the UK strives to give every adult their COVID-19 vaccinations, what do we know about their effectiveness in protecting those with weakened immune systems such as some individuals with scleroderma?

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Thursday 22nd July 2021

Touching on Touchscreens - Making Technology More Accessible for People With Scleroderma

Are you reading this from a touchscreen device? Using touchscreen technology is something many of us do every day, without even thinking about it. But what happens to the people who have conditions that make touchscreens tough?

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Friday 16th July 2021

Systemic sclerosis-associated pulmonary arterial hypertension

Systemic sclerosis-associated pulmonary arterial hypertension (SSC-PAH) occurs when fibrosis causes the walls of the pulmonary arteries to thicken, raising their blood pressure and placing additional strain upon the heart. The early signs of SSc-PAH include persistent breathlessness, that may be so mild at first that you hardly notice it. If this sounds familiar, tell your doctor.

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Thursday 8th July 2021

Collaboration is Key: Developing a New Diagnostic Tool for Scleroderma

“We are limited by current assessment tools such as the skin score, which is limited by subjectivity, as well as the time needed for training and standardisation. We need to make sure that new treatments are evaluated in the best and most robust way so that we can make more progress and discontinue approaches that do not work.” Prof. Chris Denton

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Friday 17th July 2020

The crossroad between scleroderma and Covid-19

The COVID-19 pandemic continues to be, a challenging period of almost everyone’s lives. A team of researchers from the University of Florence and Shantou investigated the potential of Covid-19 complicating interstitial lung disease in scleroderma as well as the effects on routine clinical care and psychosocial implications.

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Friday 3rd July 2020

Digital Ulcers – Capturing The Patient Experience to Improve Outcomes

Researchers funded by the Scleroderma Clinicals Trials Consortium (SCTC) sought to understand how digital ulcers can affect a person’s life, discussing pain, aggravating factors and practical measures taken when ulcers develop.

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Monday 8th July 2019

SRUK wins £1,000 Movement for Good award

SRUK has won a £1,000 boost as part of specialist insurer Ecclesiastical's Movement for Good awards, which is giving £1 million to charities this summer.

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Monday 23rd July 2018

Online chat with scleroderma experts on Twitter #SclerodermaChat

#SclerodermaChat covered every aspect of the disease - from medical research and treatments to the experience of patients and carers.

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