Share your story
Help raise awareness of scleroderma by telling your story
Scleroderma is a rare, chronic disease of the immune system, blood vessels and connective tissue. 2.5 million people worldwide have scleroderma, and in the UK there are 19,000 people diagnosed.
It is an autoimmune condition, meaning the immune system becomes overactive and attacks healthy tissue in the body. It is a severe condition and can be fatal.
The Federation of European Scleroderma Associations (FESCA) is an umbrella support and advocacy organisation composed of 25 scleroderma associations of 19 EU countries. FESCA have created the poster for you to download and put up. Then watch Mary and her story of systemic scleroderma in the video.