World Scleroderma Day

Scleroderma is a rare, chronic disease of the immune system, blood vessels and connective tissue. 2.5 million people worldwide have scleroderma, and in the UK there are 19,000 people diagnosed.

Scleroderma is an autoimmune condition. This means that the immune system becomes overactive and attacks healthy tissue in the body. For many affected people, this is a severe, life-changing condition that may prove fatal.

World Scleroderma Day offers a fantastic opportunity to increase awareness and raise vital funds for research into new treatments and ultimately developing a cure. The Federation of European Scleroderma Associations (FESCA) is an umbrella support and advocacy organisation. It is made up of 25 scleroderma associations located within 19 EU countries. FESCA have created the attached poster, and we would like to ask all of our supporters to download and display this to help us to raise awareness of this challenging and little-known condition.

Mary is a member of our community who shares her story of living with systemic sclerosis in the following video. If you would like any further information or support, please contact us or call our free helpline on 0800 311 2756.

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